Posts Tagged ‘degenerative disc disease

16
Aug
09

Life…

Well, life is just life right now. My pain is pretty bad, it seems to be getting worse. The degenerative problems with my spine are worse and my dr. thinks that something (a disc) is pushing on a nerve root in my lower back. I can’t stand up for more than 5 minutes at a time. It SUCKS. I am having what they call “occipital migraines” you can google it. It’s scary and I am not just having them occasionally, I am having 2 or 3 a DAY. I am calling my doctor in the morning so I can go see him about it. Something isn’t right, I hope we can find out what IS causing me to have them so frequently.

My Idol

My Idol

I do have to say I am on CLOUD NINE interview with my idol Ace Frehley! We seemed to get on well and he was laughing and stuff with me. When he mentioned the tour, I told him he had to come to Kentucky and he said something like “Yes and you need to be backstage”. WOOO HOOOOO! I am also talking to his awesome publicist Kymm and she is sending me the CD when it drops in September. I got to review the CD before the interview, and I listened to the whole thing and I have to say it’s AMAZING. There are a couple of surprise songs on there that I love like, “A little below the angels” and “Change the world”, “gengis khan” was also great. YOU need to pick up Anomaly when it comes out on September 15th. I am also working on getting a few other HUGE celebs in on the show. I can’t say who yet, but keep watching my tweets! 😉

I just want to say to Ace, thank you sooo much for letting me interview, for being so nice and caring. I appreciate it more than you know. Any other interview I have after this one will pale in comparison haha. Ace you are, as you always will be, my idol. YOU are the one who inspired me to play guitar, your music solo and with KISS got me through such a bad childhood…oh hell I just don’t have the words, just THANK YOU!

I’m tired now…..I’m out.

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15
Jan
09

no catchy subject today…

Well, we got snowed in this morning and I was not able to go to my SS appointment OR the neuro, but the lady from the SS office called me and we did my application over the phone and she is going to let me bring in my MRI reports and other medical records I want to go with the application to the DDU (Disability Determination Unit). She was VERY nice and that was a good thing for me, it made the process a bit easier. She was very understanding and kept saying “Bless your heart”, to everything I told her that was wrong…I wanted to say–make a note lady saying “The guy REALLY is sick, give him the damn disability already” HAHAHA.

The neuro appointment I am going to re-schedule. I saw my regular doctor yesterday, he was worried about my TIA’s and said I would probably have to go on Plavix, but he wasn’t going to give it to me until I saw the neurologist and got his opinion on it, because it can be dangerous. Joy, joy, that’s what I need, more dangerous medications.

Speaking of meds, I got my Neurontin yesterday. Chris (the patient advocate) saw me walking in the hall of the clinic and pulled me into his office. I just love him to bits, he’s gay and SO nice, sweet and funny. He really tries his dead level best to get my meds as cheap as he can or for free. I got three HUGE pharmacy bottles of Neurontin. I started titrating the dosage yesterday, I took one, today I will take two and tomorrow I will take three and will stay at three a day for a while (900 mg’s a day) and my dr. said we can work up to 4800 mg’s a day if needed, WOW, 4800 mg’s, sheesh. When I was naming off my medications to the lady at the SS office, she was astonished at how many I am on, I had to laugh at her. Shit I am on so many that I forget what they are unless I put the bottles in front of me. I am forever starting “new meds”. I started the Neurontin yesterday along with a muscle relaxer. The muscle relaxer is suppose to “try” to help my massive spasms in my neck that are straightening my spine *le sigh*. I swear to GOD I am a walking pharmacy…anyone need anything??? LMAO!!!

I am sitting up here in bed, on the  laptop, looking out my window. It is snowing, fucking cold and pretty outside. We are suppose to have the coldest weather yet this year today and tomorrow. We are only going to have a high in the lower teens today and tonight a low of 4 degrees with wind chills well below zero. My ass is staying INSIDE. Tomorrow is more of the same, brrrrrrrr.

Now on to FOOD, one of my favorite subjects haha!! I have a roast cooking on low in my crock pot, YUM. I have potatoes, carrots and sweet vidalia onions in there with it. I can’t wait to eat it later this evening haha. D always says, “Ewww you are eating flesh again?”. Mmm, yes baby, I am hahaha. Weird how I am such a meat eater and she is such a vegetarian, but we still love each other, don’t we honey? hehehehe…

I am still weak from the TIA’s, sleepy and dizzy from all the meds…I just want to lay in bed and do nothing but sleep and maybe play pogo. Do any of you play Pogo? If you do, tell me, we could play some games together. I don’t really play games with strangers, I guess it’s part of my autism, but I worry they will be mean to me *sigh*. I get sick of playing the robots sometimes. I have a club pogo membership, D and Jerilyn always make sure it’s paid up by the year for me, because I don’t do much else online but blog, DJ and play pogo. So I am thankfully that they let me have my paid membership. If any of you play and want to try the club pogo, I can give you a free five day guest pass, weeee! Just let me know!!

Ok I am done typing, my eyes are unfocused and my arms and hands hurt. More later!!!!

23
Dec
08

Doctor’s appointment and general bitching…

So I had my doctor appointment yesterday. First off he checked my belly button area and said he didn’t feel a hernia, so the hernia repair is still ok, BUT, he thinks I may have adhesion’s (scar tissue) in that area and it might have some of my intestine blocked *SIGH*. I have to see the surgeon on Tuesday the 30th and I will know more about that. Now on to my back pain. This pain in my upper back/neck area is some of THE worst pain I have ever felt in my life. I am losing control of my left arm, both arms are weak, it’s hard to type, I have to rest a lot when I type blogs, etc., I can’t really write at all, it is affecting my memory, the way I walk, my speech *SIGH*. The pain is a constant deep, burning ache that never goes away. It runs down my left arm to my fingers (I am a lefty so this is NOT good). It is now hurting a bit on the right side as well. Every now and again it feels like bee stings or electric shocks are running through the area and it makes my whole body jerk with the pain. My doctor said that it is definitely spinal compression, we just have to find out what is causing the compression. Since I was diagnosed with DDD (Degenerative Disc Disease)/Arthritis of my spine when I was 8 years old, is it THAT? You know, herniated discs, it is bone spurs or GOD forbid is it cancer that has spread to my spine and a tumor is pushing on my spinal column? I will know more after my MRI which is also Tuesday the 30th. My doctor said regardless of WHAT it is I still have to have surgery. So it’s not a matter of IF, it’s a matter of WHEN it will happen. We have to figure out first what is causing the compression, then we have to find a neurologist who will see me and do the surgery for me, because I still have NO fucking insurance (thanks to the government still fighting my disability, the assholes).

He put me on Neurontin…has anyone who reads me ever taken it? I don’t know what to expect from it. It’s SUPPOSE to help with nerve pain. I won’t get it for at least 3 weeks though, because it is expensive and I have to wait for the drug company who makes it to approve me and give me my 3 months free supply *SIGH*.  My doctor IS so good though, he knows I am in real pain, and he is the one who said he and other primary care physicians can’t write narcotics on a regular basis. Well, he gave me my tramadol with NO questions asked (THANK GOD), and he wrote me Vicodin (not the BEST narcotic for pain, but better than nothing) to do me until I get the Neurontin. He really does do everything he can to help me. He actually calls me at home to ask me how I am and things like that. I have NEVER had a doctor do those things for me. He’s wonderful, just wonderful. I am blessed to have found him.

Now for the bitching. My ex doctor should have LISTENED to me on so many levels, but he didn’t. I TOLD him about the pain in my upper back/neck area about 8 months ago, he just put me on more pain meds, didn’t x-ray it, didn’t touch me to check the area, NOTHING. I told him a year or more ago about my heart beating weirdly, he dismissed that and didn’t do any testing. Now I find out that my heart IS damaged, it is not properly pumping blood to my body. My neck/upper back area IS fucked up. He DID NOT listen to me, he dismissed everything I said, just giving me more and more narcotics and stupid me thought–“Well, he IS a doctor, I guess he knows best.”–how stupid I was *SIGH*. I have spoken to other patients of his, he NEVER diagnoses ANYTHING, he simply gives out more and more pain pills. He is a pill mill, a fucking pill mill. I told D last night that I AM suing him. I am going to start looking for lawyers after Christmas. He is NOT going to get away with what he’s done to me. If he had listened to me, to my complaints of pain, would my heart have not been so damaged? Would my spine problems have been lessened? Because of him, I now have irreversible heart damage, I am facing paralysis because of the compression of my spine, and I have to wonder if he is not partially at fault for my kidney failure. Did all the damn medications he had me on hurt my only kidney and cause it to slowly fail? *SIGH* I am SO very pissed off right now. I want to sue his ass– I am also going to report him to the AMA and the KY board of physicians. I wouldn’t be surprised if they found out he was defrauding Medicaid and such.

So anyhow, I do have SOME pain relief thanks to my new wonderful doctor. Thanks to the ex doctor I have to have spine surgery or be paralyzed, what a choice to make huh? Hmm, do I want them to cut my throat and go in to work on my spine or do I want to just wait until it compresses so bad I am paralyzed–*shakes my head*–I am on dialysis and will be the rest of my life and my heart is damaged.

fuckyou

FUCK YOU Dr. Butthead! GAH! I am so upset, so very upset. All evening yesterday and since I have been up this morning, I have went between crying my eyes out to raging like a bull. I am PISSED. I am scared and I am in FUCKING pain–thanks Dr. Asshole, thanks a lot.




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